I don't know of any charities or visiting specialist's but I do know Dr. Jesus Zumano (he is the president of Ej. Lopez Aceves). He is an ear doctor in RP. The name of his practice is Centro de Sordera y Mareos. His address is Ave. Constitucion #297 phone # (638) 383-5334. If you can get me some more info I will call him and send you a pm.
I don't know of any charities or visiting specialist's but I do know Dr. Jesus Zumano (he is the president of Ej. Lopez Aceves). He is an ear doctor in RP. The name of his practice is Centro de Sordera y Mareos. His address is Ave. Constitucion #297 phone # (638) 383-5334. If you can get me some more info I will call him and send you a pm.
lagrimas85....sending you a pm with the name of the little girl's mother and her phone number. I'll also give her a call and give her the doctor's number. Thanks!!!
Mark, his office is near your house. Cady corner from Los Pinos on Constitucion. We talked to the girls grandmother but we are still waiting to hear from the Doctor.
A local friend's 2 year old granddaughter is deaf, and they need to have her checked out to diagnose the cause. They are very poor.
Does anyone know of any local charity or visiting specialist that might be able to help them out to get some tests done?
Rocky Point Joe, This is my profession that I am trying to retire from. If the little girl is totally deaf or subtotally deaf, she may need hearing aids, or a cochlear implant or the use of sign language to start inmediately. She may have a partial hearing loss, and then need hearing aids and the family needs help in how to deal educationally with the little girl. The child will have a chance at learning language if she is treated correctly and quickly medically and educationally. Does the school for special needs have a certified, specialized teacher of the deaf and hard of hearing. If they do, which I really doubt, but is possible, that person can really be of great help. I haven't gotten down that way again yet, because of our cooperative work here on the border in NM, and family issues, but I would be so glad to consult by email to anyone who is involved with the family. The other help that could assist the child are Spanish speaking professionals that are already in Tuscon. Some or one of them might be very glad to consult with the family. Oh, I forgot to mention that our adult daughter is deaf. She is married and has four children. We entirely communicate in sign language. So good of you to advocate for this family.
Rocky Point Joe, This is my profession that I am trying to retire from. If the little girl is totally deaf or subtotally deaf, she may need hearing aids, or a cochlear implant or the use of sign language to start inmediately. She may have a partial hearing loss, and then need hearing aids and the family needs help in how to deal educationally with the little girl. The child will have a chance at learning language if she is treated correctly and quickly medically and educationally. Does the school for special needs have a certified, specialized teacher of the deaf and hard of hearing. If they do, which I really doubt, but is possible, that person can really be of great help. I haven't gotten down that way again yet, because of our cooperative work here on the border in NM, and family issues, but I would be so glad to consult by email to anyone who is involved with the family. The other help that could assist the child are Spanish speaking professionals that are already in Tuscon. Some or one of them might be very glad to consult with the family. Oh, I forgot to mention that our adult daughter is deaf. She is married and has four children. We entirely communicate in sign language. So good of you to advocate for this family.
Oh, I forgot to mention that if the little girl is deaf, subtotally or totally, if there are educated deaf people in the RP community, they can be of inmense help.
Janet......the mother doesn't know the cause of the hearing loss....that is why the little girl needs to be tested/diagnosed....but from speaking to the mother, it sounds like the little girl is totally deaf. I didn't try any loud noises when I saw her on Sunday....I actually didn't know my friend had another older daughter (who I hadn't met before), with a grandaughter......
We're still waiting for the doctor to return to town...lagrimas85 and his wife are keeping me updated.....and he, or I, will keep the Forum updated as we learn more.
It's gratifying to see the concern on the Forum....
Oh, I forgot to mention that if the little girl is deaf, subtotally or totally, if there are educated deaf people in the RP community, they can be of inmense help.
We talked to Lorena the girls grandmother yesterday and she said the girl is totally deaf but they have never taken her to see a doctor. So who knows. Joe, Fabiola it turns out knows Lorena.
Oh, I forgot to mention that if the little girl is deaf, subtotally or totally, if there are educated deaf people in the RP community, they can be of inmense help.
La Montana School for Special Needs Children would be where to look for help, especially with sign language
If any of you used to go to the old Margaritavilla (when Marty had it, and Jesika was there), Lorena worked there. She also worked over at the Coyote Ugly for Marty's son and daughter-in-law.
Will watch for more information. If there are resources needed, I would like to know and try to find them, but again, I think in Tuscon, there may be incredible resources also.
The School for the Deaf for the whole state is in Tuscon.
lagrimas85 was not in Penasco last week, but should be back tomorrow(Monday)...and will be following up. He and his wife (Fabiola) have been in touch with the little girl's grandmother.
I have been talking with lagrimas85 today and he told me that the equipment Dr. Jesus uses is not suited to test a child of 2 years and that he is checking on making arrangements to get her to Hermosillo where they have equipment that can do tests on younger children... let's all keep our fingers crossed...
Another Update... Just had lunch with Bill a.k.a. lagrimas85 and he and his wife Fabiola, started the process of getting the little girl to Hermosillo... they went to the Social Security Hospital, who sent them to "DIF" and from there they were sent to another organization called "CRI" where they were told to get some information and permission from the mother of the child...
After they told me this we called our friend Blanca who was the director of "DIF" and is now the President of "La Esperanza Para Nueva Vida A.C." and Blanca told Fabiola that after they get the info to call her and she would assist with and hopefully speed up the process...
To sum things up... The wheels are rolling and things are looking very good... A BIG Thanks to Bill, Fabiola and Blanca...
The C.R.I. program for kids we think is going to pay for The diagnosis, all transportation to Hermosillo and any operations needed. The mother probably will need help with the medicine, her lodging in Hermosillo and also will be missing work and not have any income. Any donations should go to Mark and he can decide how to best use them.
Again....thanks to Bill (lagrimas85) and his wife Fabiola for all the leg work they have done. :notworthy::notworthy::notworthy::gradea: Hopefully the little girl will get the needed help in Hermosillo. I know that Mark(Seadweller) and Barb will see that any donations will be handled properly.....
Joe, Friday afternoon we talked to Miriam in the C.R.I. office in Mexico City we were told that anytime after Dec. 6th we could enroll her, anyway we will get the info they need from the mother or the grandmother sometime before the 6th.
The latest update that I have is that Mark has $175 that was donated during the Thanksgiving boat trip to Bird Island for expenses, and that lagrimas85's wife, Fabiola, was getting info on the little girl from the grandmother, Lorena, most likely for the paperwork that needed to be filed.
Joe, last night Fabiola talked to Lorena and got the information on the mother and daughter, she will call CRI in Mexico City tomorrow and see what we need to get the girl enrolled. I mentioned to you when Fabiola went to the DIF office in RP Fabiola thought the director acted like she didn't know too much about the program and that was why they gave her the phone number in Mexico City. But anyway we will find out tomorrow what we need to do. Also while talking to Lorena last night, she mentioned they had taken the baby to see a doctor San Luis sometime ago and was told to have the baby tested (they didn't because of the expense) and there was a good chance that with an operation or maybe only with hearing aids the baby would be able to hear. Mark we may need Blanca's help. P.S. Just for the sake of knowing we asked Dr. Jesus about how much the test should cost if CRI doesn't move along to fast, he said it should cost 5000-6000 pesos. or 420-500 dllrs. Thats not alot of money.
Thank for the update Bill....and for you and Fabiola keeping up on this matter. :thumbsup::thumbsup:
Sounds like the typical bureacracy....not uncommon in the US either. I've found you just have to keep at them....even if they keep pointing you elsewhere. You can't let them wear you out so that you quit.
Mark we may need Blanca's help. P.S. Just for the sake of knowing we asked Dr. Jesus about how much the test should cost if CRI doesn't move along to fast, he said it should cost 5000-6000 pesos. or 420-500 dllrs. Thats not alot of money.
Bill we have $275.00 collected so far... just let me know if we need to contact Blanca... and like Joe said Thanks to you and Fabiola for doing all the leg work on this...
Joe, on Tuesday we went to a different DIF office and talked to Esperanza Lopez about enrolling the little girl in the CRI program. She said the girl could enroll but only with the mother with her because of the nature of the questions they need to ask.( The way she put they want a history of the baby from the time it as conceived to present.) only things the mother would know. We left it with Lorena to find out when her daughter could get off of work and then make the appointment with Esperanza Lopez. Joe we are still working on getting her tested without CRI. when I know some more I will report. Thanks
Bill...I sent a PM to Mark.....I know he's pretty busy tomorrow with the christmas Party at the community center....but if you're in town this weekend, that might be a good place to meet her.
Joe, Monday I talked to Lorena to see if her daughter Maria had talked with DIF about enrolling the deaf girl in the CRI program and Lorena said she had and was told for the time being CRI was only enrolling cancer patients (Fabiola was told just the opposite 2 weeks earlier, that they weren't accepting cancer patients.) So we definetly need to get Blanca involved. We also asked Lorena if we could take the baby to Mexicali to get her tested and told her some of the members of RPT had donated money for this and she started crying and told me to thank everyone. So thanks everyone from Lorena. Thanks Joe
I can just imagine Bill and Fabiola's frustration.....thanks for plugging away. I'm not sure how much can be accomplished in the next few days (wiith Christmas)....but I'm sure Mark will be reading this, and maybe Blanca might be able to do something.
Bill(lagrimas85) and his wife Fabiola have been "leading the charge" on this for weeks.....I've been mostly disengaged (other than bugging Bill on status)....had my own medical scare to deal with the last 3-4 weeks....but it's looking much better after a couple minor surgeries and good results from tests and labwork.....
I'm know the individuals who donated $$ did so without looking for any recognition....but I think I need to mention them anyways.....Joester, Ladyjeeper, and as always, Mark (Seadweller).....there are also others who have offered additional money if it's needed........THANK YOU ALL!!!!!:notworthy::gradea::notworthy:
Joe, its just they're not consistent with what they say so we are always starting over. If you call the Mexico City office their answering machne says they are not accepting cancer patients. When Fabiola talked to them last month they told her they would be happy to begin the enrollment anytime after the 6th of Dec. and now they tell Lorena they are only accepting cancer patients.
Joe, Saturday we met Blanca the director of LEPNV. We brought the little girl and her mother with us, we explained the situation with CRI and she said she had a better idea. So here it is. Just by chance the doctors with Manos De ayuda from Tucson were in RP on Saturday for childrens therapy sessions so Blanca had us meet her at the clinic where the therapists were working. The doctor asked us to have the baby tested in Mexico (We gave Blanca the phone number for an ear specialist in San Luis that we had talked to so she could explain the situation and try and negotiate a discount from him). Once Blanca makes the appointment, we will take the baby to San Luis and then Manos De Ayuda will begin to work on getting the mother and the baby papers to cross the border and will operate or arrange for hearing aides in Tucson. www.manosdeayuda.org/ La Esperanza Para Nueva Vida is trying to build a new kitchen and needs donations. Anything would help. cement,plywood,block,electrical wiring or money. Contact Seadweller with any donations for the baby or the kitchen.
Bill (lagrimas85)....you and Fabiola have gone "above and beyond" in trying to get help for the little girl. I may have posted the info on here about the girl, but you've been the ones doing all the work.
Just a general question....are the prices for building materials cheaper in the states? There are enough of us going back and forth that can bring in a little at a time....and is there any amount that can be brought in without paying the import duty?
BTW, I got stopped this last time going in to Mexico, but it was a cursory look....
It was a pleasure Joe, it turns out Lorena worked for a friend of mine as a cook when he owned Rocky Gardens. When we arrived at LEPNV, we met Harold (Trade) and then Mark showed up with Barb. At LEPNV they have different courses available for the poor people, sewing, english, beautician and also package food bought with the money that Harold brings every month, when they have the money they also build small houses. There were people from the states, Mexico and I met someone from Brazil packaging food on Saturday for distribution in the neighborhoods and we also unloaded a couple of the computers Mark was given in Phoenix.
Joe, we heard from Blanca this morning, she has negotiated a discount with the doctor and when we figure out when all involved can go, we will take the baby to San Luis to have her tested, if it turns out the baby can use hearing aids she negotiated a discount also but said it may be better to see what the doctors with Manos De Ayuda can come up in Tucson with as it may be free.
We still dont have an exact cost from the doctor, but it looks like it will be about $4000.00 pesos, not too bad we were origianlly quoted $6000.00. I am shooting for next week for the trip to San Luis.
We still dont have an exact cost from the doctor, but it looks like it will be about $4000.00 pesos, not too bad we were origianlly quoted $6000.00. I am shooting for next week for the trip to San Luis.
Blanca stopped by for a visit yesterday and told me all about it... She also mentioned that she knows someone that sells hearing aids ($15,000. pesos) but she may be able to get a better price on them if that is what is needed...
We have raised $325.00 US dollars so far so with the exchange rate that should get us pretty close to the $4000.00 pesos needed for the Dr. visit...
We still dont have an exact cost from the doctor, but it looks like it will be about $4000.00 pesos, not too bad we were origianlly quoted $6000.00. I am shooting for next week for the trip to San Luis.
lagrimas aka sea monkey along with his wife are driving the child and mother to san luis today. Hope it goes good today for them.
Oops....my bad....heard brom Bill (lagrimas85) the other day telling me that....but forgot to post it up here. As soon as I hear anything from him on how it went, will get it up here....
Bill (lagrimas85) stopped by this morning for the money we raised ($325.00) and they left for San Luis this afternoon... just before he came to my house Bill talked with Blanca from La Esperanza Para Nueva Vida, she had set things up for them to get a discounted price from the doctor who is coming from Mexicali to San Luis to treat the little girl... Her appointment is at 8:00am tomorrow Friday Feb. 3, 2011...
So things have been started for the beginning of a new life and a new world for the little girl... depending on her diagnosis, if surgery is needed, she will be taken to Tucson by the doctors from the Manos de Ayuda clinic and she will receive further care in the US....
Thanks to all who donated and or lent a hand to get this little girl the help she needed... (I have pictures of her and her family on one of my cameras and soon as I find them I will post them here so you all can see who we are helping)
Thanks LJ... at the moment we just need to wait and see what her diagnosis will be, then we can find out if we can get it taken care of by Manos de Ayuda...
Just received a phone call from Bill... they are on their way home from the doctors appointment in San Luis... the diagnosis wasn't good, the baby needs to have operations... Bill said they are going to stop and see Blanca so work can get started on getting the little girl to Manos de Ayuda clinic and hopefully to a hospital in Tucson...
Mark,
If you need some more money, I got some..............
As it looks now we will be needing to raise more money to help out with the costs of regaining Marias hearing... The doctor said that there is a very good chance of her being able to hear and lead a normal life like any other child but it will take some work... Maria has nerves that aren't responding and there is a device that with over a period of time can help the nerves to gain response to the vibrations of sounds... this device would be needed for approx. one year, and this process is neccessary before she could even be fitted for hearing aids... approximate cost of this device 15,900. pesos... the cost of this child leading a normal life... priceless
Harold can we set something up through the AC or the 501c3 for donations???
If anyone feels like they would like to be a part of helping Maria please contact Bill or me...
Some more info....heard from Bill (lagrimas85), and from his description, the girl may need cochlear implants (or something like that). The cost for the devices is about 15,900 pesos as Mark mentioned, and the surgery in Mexico would run about $40-50K USD. I think they need to see if the group from Tucson that Mark mentioned before(Manos de Ayuda clinic) will be able to take care of the surgery and implants since the girl now has a diagnosis. I'm attaching some photos that Bill took of the little girl, Jimena, and here mom, Maria.
Mark...I'm good for another $100 US for any fundraising.
Thanks again to Bill and his wife Fabiola.....his "suspension" from the Forum should be over pretty soon....
I'm attaching his email: Joe, we are back in RP. We had a nice trip, I called some friends of ours in San Luis when we arrived there and they told us to stay with them, so no hotel bill and then they fed us while we were there. There is good news and bad news about Jimena, the good news is that with an operation she will be able to hear and lead a normal life, for now she needs an apparatus installed ( the nerve or nerves in her ears are dead) to stimulate the nerve for one year before they can operate, Joe this device at a big discount is 15,900.00 pesos, the operation involves an implant that transmits sounds to the inner ear and in Mexico is 40,000.00 to 50,000.00 dollars. Joe the little girl and her mother are precious and need to be helped. We talked to Blanca this evening about the situation and is going to see what she can do. The charge for the specialist to come from Mexicali this morning and for the anestisiologist was 5000.00 pesos if you could let everyone that donated know. If also you could seek some donations to Mark for the apparatus. All in all it was a really nice trip through El Golfo and the farms around San Luis. We had a block plant there 17 years ago and it was nice to go back. Joe I will try to send you some pictures of Jimena if I can. Bill
Thanks mark, barb and Joe.... I just made a modest donation to adopt a classroom website: http://www.rockypointclassroom.com/ for little maria using Paypal... every little bit helps right !
Seadweller said:
Ooooops sorry I got the names mixed up and was calling Jimena the baby, "Maria"... Thanks Joe...
Thanks mark, barb and Joe.... I just made a modest donation to adopt a classroom website: http://www.rockypointclassroom.com/ for little maria using Paypal... every little bit helps right !
thank you Tomcat... you're right "every little bit helps"
